U.S. Health Resources and Services Administration
The HIV/AIDS Bureau (HAB) of the Health Resources and Services Administration (HRSA) was formed in August 1997 to consolidate all programs funded under the Ryan White Comprehensive AIDS Resources Emergency (CARE) Act. The CARE Act was signed into law on August 15, 1990 to improve the quality and availability of care for people with HIV/AIDS and their families. Amended and reauthorized in May 1996, and November 2000 the Act is named after the Indiana teenager, Ryan White, who became an active public educator on HIV/AIDS after he contracted the syndrome. He died the same year the legislation was passed.
In serving people and families affected by HIV/AIDS, the Bureau, headed by HRSA Associate Administrator Deborah Parham, Ph.D., R.N., has identified four factors that have significant implications for HIV/AIDS care, services and treatment:
- The HIV/AIDS epidemic is growing among traditionally underserved and hard-to-reach populations.
- The quality of emerging HIV/AIDS therapies can make a difference in the lives of people living with HIV.
- Changes in the economics of health care are affecting the HIV/AIDS care network.
- Policy and funding increasingly are determined by outcomes.
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Table of Contents
Dedication Contributing Authors
Part I. Introduction
Chapter 1. HIV and Palliative Care By Joseph F. O'Neill and Magda Barini-García Chapter 2. Overview of Clinical Issues By Peter A. Selwyn and Mimi Rivard
Part II. ...
It is axiomatic in palliative care that suffering occurs in physical, emotional, practical, and spiritual domains and that each of these domains has an impact on any given symptom.1 Although in many ways these domains are more complicat...
People who are young or old, homeless, new immigrants, incarcerated, or newly released from jail or prison may have needs that differentiate them from other people living with HIV/AIDS. Clinicians should recognize that these needs may p...
"Nothing would have a greater impact on the care of patients with advanced incurable disease than instituting the knowledge we have now to improve their quality of life."
-- Jan Stjernsward
Over 60 million men, women and children ha...
Well-informed patients can optimize their quality of life through partnership with their physician in clinical decisionmaking. This collaborative process is particularly important for patients with advanced AIDS and their families. This...
This chapter is designed to give providers the information they need and that their patients may need during the course of treatment and care. The resources are meant to be comprehensive but not exhaustive. These resources will provide ...
Patients receiving palliative care for HIV disease have the potential for numerous drug interactions, given the complex drug regimens used to treat both early as well as advancing HIV disease. It is estimated that at any point, up to 50...
Health professionals caring for people living with HIV will encounter myriad symptoms ranging from minor and bothersome problems to problems that are associated with great distress. In caring for a patient who presents with a symptom, t...