A Clinical Guide to Supportive and Palliative Care for HIV/AIDS
Part I. Introduction
- Chapter 1. HIV and Palliative Care
By Joseph F. O'Neill and Magda Barini-García - Chapter 2. Overview of Clinical Issues
By Peter A. Selwyn and Mimi Rivard
Part II. Management of Advanced HIV Disease
- Chapter 3. Assessment of Physical Symptoms
By Jane M. Ingham and Maria Farooqi - Chapter 4. Pain
By William Breitbart - Chapter 5. Constitutional Symptoms
By Rocío Hurtado and Eric L. Krakauer - Chapter 6. Pulmonary Symptoms
By Connie J. Beehler - Chapter 7. Gastrointestinal Symptoms
By Michael Wohlfeiler - Chapter 8. Oral Problems
By David I. Rosenstein and Gary T. Chiodo - Chapter 9. Dermatologic Problems
By David J. Kouba and Ciro R. Martins - Chapter 10. Psychiatric Problems
By Marshall Forstein - Chapter 11. Substance Use Problems
By Joseph F. O'Neill and Peter A. Selwyn - Chapter 12. The Care of Children and Adolescents
By Nancy Hutton and James M. Oleske
Part III. Psychosocial, Cultural and Ethical Issues
- Chapter 13. Spiritual Care
By Christina M. Puchalski and Carlos Sandoval - Chapter 14. Culture and Care
By Carlos Sandoval - Chapter 15. Special Populations
By Carla S. Alexander and Helen Schietinger - Chapter 16. Grief and Bereavement
By Elizabeth A. Keene Reder - Chapter 17. Ethical Issues
By Lynn A. Jansen, Barbara E. Johnston and Daniel P. Sulmasy - Chapter 18. Legal and Financial Issues
By Robert Greenwald and Nima Eshghi - Chapter 19. Palliative Care in Resource-Poor Settings
By Kathleen M. Foley, Felicity Aulino and Jan Stjernsward - Chapter 20. Care for the Caregiver
By Joseph F. O'Neill and Martha M. McKinney
Part IV. Care at the End of Life
- Chapter 21. Patient-Clinician Communication
By J. Randall Curtis - Chapter 22. Facilitating the Transition to Home-Based and Hospice Care
By Harlee S. Kutzen - Chapter 23. Medical Care in Advanced AIDS
By Frederick J. Meyers and John F. Linder - Chapter 24. Medical Care at the End of Life
By Carla S. Alexander, Anthony Back and Margaret Perrone - Chapter 25. Prevention of Skin Breakdown
By Jean Tuthill and Suzanne R. Garnier
Part V. References for the Clinician
- Chapter 26. Resources
By Magda Barini-García and Demia L. Sundra - Chapter 27. Pharmacologic Interactions of Clinical Significance
By Justina Edmunds-Ogbuokiri
A Clinical Guide to Supportive and Palliative Care for HIV/AIDS is dedicated to Belynda Dunn, an inspirational leader and beautiful role model, who brought hope, joy and love to so many people. Her faith was deep and powerful and sustained her throughout her life.
Acknowledgements
The contributions of many special people made this guide possible. Thanks go to Magda Barini-Garcia, M.D., the Project Officer, who skillfully oversaw and managed the project's progress and quality, and Joan Holloway whose gift for art and innovation assured the guide's look and practicality. Credit is also due to Kim Dickerson, who designed and produced the guide, and Susan Lawrence, who was the copy editor.
About the Editors
Joseph F. O'Neill is Director of the White House Office of National AIDS Policy. Prior to that he was Associate Administrator of the HIV/AIDS Bureau, Health Resources and Services Administration, U. S. Department of Health and Human Services.
Peter A. Selwyn is Director of the Palliative Care Program at Montefiore Medical Center as well as Professor and Chairman of the Department of Family Medicine at the Albert Einstein College of Medicine.
Helen Schietinger has worked in the field of HIV/AIDS since 1981, focusing especially on palliative and community-based care.
| Carla S. Alexander, M.D. Assistant Professor of Medicine, Medical Director of Palliative Care, Institute of Human Virology, School of Medicine, University of Maryland, Baltimore, MD Felicity Aulino Open Society Institute Project on Death in America New York, NY Anthony Back, M.D. Associate Professor, Department of Medicine/Oncology, University of Washington Director of Palliative Care, VA Puget Sound Health Care System, Seattle, WA Magda Barini-García, M.D., M.P.H. Chief Medical Officer, Division of Training & Technical Assistance HIV/AIDS Bureau, HRSA Rockville, MD Connie J. Beehler, M.D. Medical Director Hospice at Riverside & Grant Columbus, OH William Breitbart, M.D. Chief, Psychiatry Service, Department of Psychiatry & Behavioral Sciences Memorial Sloan-Kettering Cancer Center New York, NY Gary T. Chiodo, D.M.D. Professor, Department of Community Dentistry, School of Dentistry Oregon Health & Science University Portland, OR J. Randall Curtis, M.D., M.P.H. Associate Professor of Medicine Division of Pulmonary & Critical Care University of Washington Seattle, WA Nima Eshghi, J.D. Clinical Instructor Harvard Law School Cambridge, MA Maria Farooqi, M.D. Fellow, Palliative Care Program Lombardi Cancer Center Georgetown University Medical Center Washington, DC Kathleen M. Foley, M.D. Director, Open Society Institute Project on Death in America Memorial Sloan-Kettering Cancer Center New York, NY Marshall Forstein, M.D. Assistant Professor of Psychiatry Harvard Medical School The Cambridge Hospital Boston, MA Suzanne R. Garnier, R.N., B.S.N., C.W.O.C.N. Health at Home, Home Health Agency of the Community Health Network San Francisco Department of Public Health San Francisco, CA Robert Greenwald, J.D. Senior Clinical Instructor Harvard Law School Cambridge, MA Rocío Hurtado, M.D. Clinical HIV Fellow at Brigham & Women's Hospital, Combined Infectious Disease Fellow at Massachusetts General Hospital and Brigham & Women's Hospital Harvard Medical School, Boston, MA Nancy Hutton, M.D. Associate Professor of Pediatrics Johns Hopkins University School of Medicine Baltimore, MD Jane M. Ingham, M.D., B.S., F.R.A.C.P. Director, Palliative Care Program Lombardi Cancer Center Associate Professor, Departments of Oncology & Medicine Georgetown University Medical Center Washington, DC Justina E. Ogbuokiri, Pharm.D., F.A.S.C.P. Associate Professor of Clinical Pharmacy Xavier University of Louisiana New Orleans, LA James M. Oleske, M.D., M.P.H. François-Xavier Bagnoud Professor of Pediatrics Director, Division of Pulmonary, Allergy, Immunology & Infectious Diseases, Department of Pediatrics, New Jersey Medical School, Newark, NJ Joseph F. O'Neill, M.D., M.P.H. Director, Office of National AIDS Policy The White House Washington, DC Margaret Perrone, R.N., C.H.P.N. Coordinator, Palliative Care Program University of Maryland Medical Center Baltimore, MD Christina M. Puchalski, M.D. Director, The George Washington Institute of Spirituality and Health Assistant Professor of Medicine, School of Medicine & Health Sciences, George Washington University, Washington, DC | Elizabeth A, Keene Reder, M.A. Bereavement Coordinator, Harriet Lane Compassionate Care Johns Hopkins Children's Center Baltimore, MD Mimi Rivard, A.N.P., M.S.N. Clinical Care Coordinator, HIV Palliative Care Program, Montefiore Medical Center Albert Einstein College of Medicine Bronx, NY David I. Rosenstein, D.M.D., M.P.H. Professor & Chair, Department of Community Dentistry, School of Dentistry Oregon Health & Science University Portland, OR Rev. Carlos Sandoval, M.D. Assistant Professor, Department of Psychiatry, University of Miami School of Medicine Director, Courtelis Center for Psychosocial Oncology, Sylvester Comprehensive Cancer Center, Miami, FL Lynn A. Jansen, R.N., Ph.D. Assistant Research Professor & Senior Medical Ethicist, The John J. Conley Department of Ethics, New York Medical College, New York, NY Barbara E. Johnston, M.D. Deputy Director of HIV Medicine St Vincent's Hospital-Manhattan New York, NY David J. Kouba, M.D., Ph.D. Department of Dermatology Johns Hopkins University School of Medicine Baltimore, MD Eric L. Krakauer, M.D., Ph.D. Instructor in Medicine & Social Medicine Department of Social Medicine, Harvard Medical School, Associate Director, Palliative Care Service,Massachusetts General Hospital, Boston, MA Harlee S. Kutzen, M.N., A.C.R.N. HIV Palliative Care Nurse Specialist PalCare -- A Palliative Care Program for Persons with Advanced HIV/AIDS Project Director, Louisiana State University Medical Center/HIV Division New Orleans, LA John F. Linder, M.S.W., L.C.S.W. Clinical Social Worker & Researcher Department of Internal Medicine, University of California at Davis, UCD Cancer Center Davis, CA Ciro R. Martins, M.D. Assistant Professor of Dermatology School of Medicine Johns Hopkins University Baltimore, MD Martha M. McKinney, Ph.D. President Community Health Solutions, Inc Richmond, KY Frederick J. Meyers, M.D. Professor & Chair, Department of Internal Medicine, University of California Davis Health System, Sacramento, CA Helen Schietinger, M.A., A.C.R.N. HIV Policy Analyst, Domestic & International Program Development & Evaluation Washington, DC Peter A. Selwyn, M.D., M.P.H. Professor & Chairman Department of Family Medicine Director, Palliative Care Program Montefiore Medical Center Albert Einstein College of Medicine Bronx, NY Jan Stjernsward, M.D., Ph.D., R.R.C.P. International Director Oxford International Centre for Palliative Care Oxford, United Kingdom Daniel P. Sulmasy, O.F.M., M.D., Ph.D. Professor of Medicine Director, Bioethics Institute New York Medical College New York, NY Demia L. Sundra, M.P.H. ASPH/CDC Research Fellow National Center for Chronic Disease Prevention & Health Promotion Centers for Disease Control & Prevention Atlanta, GA Jean Tuthill, R.N., M.S.N., C.W.O.C.N. Wound/Ostomy Consultant Program Development/Clinical Consultation Fairfax, CA Michael Wohlfeiler, M.D., J.D. Medical Director for Special Immunology Services, Mercy Hospital Miami, FL |