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Treatment Information Needs of People With Hepatitis C

January 6, 2017

People considering hepatitis C treatment want information on the potential harms and benefits of treatment, details of treatment regimens and basic information on hepatitis C-related liver disease, reported U.S. researchers in The Patient.

Limited research exists about the topics that people consider most important when making decisions about hepatitis C treatment.

The study involved two groups. The first group (45 people) listed all the information topics they thought would be important to reach a decision about treatment. The second group (57 people) ranked the importance of the topics identified by the first group.

The information needs identified by the first group included:

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  • harms of treatment: side effects, impact on quality of life, cost of therapy, worsening of hepatitis C and impact on wider health and other illnesses
  • details of treatment regimens: length of treatment, information on specific medications, such as how they are taken and drug interactions
  • benefits of treatment: cure, impact on long-term survival, potential improvements in other health conditions, hepatitis C symptoms and functioning
  • basic information on hepatitis C and liver disease

The second group rated almost all of the topics (16/17) identified by the first group as "pretty important or extremely important" for making treatment decisions.

The most highly ranked topics, included:

  • viral cure rate of the treatment
  • effect of a viral cure on long-term survival and other health issues
  • what side effects the treatment might cause
  • how injured their liver is
  • lifestyle changes that support liver health
  • how the medication is taken

"The findings from this study demonstrate that patients with hepatitis C wish to consider a plethora of information to assist them to make informed decisions about their hepatitis C treatment options," stated the researchers. (infohep.org, January 2017)


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This article was provided by Canadian AIDS Treatment Information Exchange. It is a part of the publication HepCInfo Update. Visit CATIE's Web site to find out more about their activities, publications and services.

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