As of December 8, 2011, there are 4,155 individuals on ADAP waiting lists in twelve (12) states. To see a list of states with access restrictions please visit NASTAD's website.
Since the release of final FY2011 Ryan White grant awards in September, including $40 million in ADAP emergency relief funding for states with waiting lists or other cost-containment measures in place, some ADAPs have been able to reduce the overall number of individuals on their waiting list. Note, however, that as states remove individuals from their waiting lists, they are adding new individuals to their program. The demand for ADAP has not dwindled and ADAP waiting lists will begin to plateau and then grow, again, in the coming months. Many ADAPs are struggling, including those without any cost-containment measures currently in place, as a result of stagnant federal and state funding and are beginning to anticipate the need for cost-containment measures, and waiting lists, in the upcoming grant year (beginning April 1, 2012).
The distribution methodology of the $35 million in additional funding that President Obama announced on World AIDS Day has not yet been determined; it is unclear how this funding will impact various cost-containment measures. Additionally the Administration has a stated goal of removing 3,000 clients from the waiting list as a direct result of receipt of the $35 million. Realizing this goal will require a shared responsibility from federal and state governments, and pharmaceutical companies.
Also please find attached a chart detailing the growth of ADAP clients served and federal ADAP funding over time. This chart clearly illustrates the growing demand for ADAP and the continued need for additional resources to keep pace with ADAP growth.
To see information on pharmaceutical company co-payment assistance and patient assistance programs, please visit the Positively Aware website or the Fair Pricing Coalition's website.